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AUTHORS
LEAD AUTHOR
Erik Lontok, PhD
CONTRIBUTING AUTHORS
LaTese Briggs, PhD Ebony Mosley
Maura Donlan Ekemini A.U. Riley, PhD
YooRi Kim, MS Melissa Stevens, MBA
LIPEDEMA SCIENTIFIC ADVISORY GROUP
We graciously thank the members of the Lipedema Scientific Advisory Group for their participation and
contribution to the Lipedema Research Project and Giving Smarter Guide. The informative discussions
before, during, and after the Lipedema Scientific Retreat were critical to identifying the unmet needs
and philanthropic opportunities to develop the lipedema research space and ultimately benefit
lipedema patients.
Sara Al-Ghadban, PhD Deborah Clegg, PhD
Postdoctoral Research Fellow, Professor, Department of Biomedical Research
Department of Medicine Cedars-Sinai Diabetes and Obesity Research
TREAT Program Institute
University of Arizona
Rachelle Crescenzi, PhD
Tobias Bertsch, MD, PhD Research Fellow, Institute of Imaging Science
Senior Lecturer, Department of Health Vanderbilt University
Education, University of Freiburg
Senior Consultant, Walter Cromer, PhD
Foeldi Clinic, Germany Assistant Research Scientist, Immunology,
Vascular Physiology, and Lymphatic Biology
Echoe Bouta, PhD Texas A&M Health Science Center
Research Fellow, Radiation Oncology
Massachusetts General Hospital Kristiana Gordon, MBBS, MRCP, CLT, MD(Res)
Consultant in Dermatology and
Glen Brice Lymphovascular Medicine,
Genetic Counselor, Clinical Genetics St. George’s, University of London
St. George’s, University of London
Carol Haft, PhD
Bruce A. Bunnell, PhD Program Director, Division of Diabetes,
Professor, Department of Pharmacology Endocrinology, and Metabolic Diseases
Director, Tulane Center for Stem Cell Research National Institute of Diabetes and Digestive and
Chairman, Division of Gene Therapy, Tulane Kidney Diseases, National Institutes of Health
National Primate Research Center
Tulane University School of Medicine `
Natasha Harvey, PhD Tim Padera, PhD
Head, Lymphatic Development Laboratory Associate Professor, Radiation Oncology,
Centre for Cancer Biology Massachusetts General Hospital and Harvard
University of South Australia Medical School
Ad Hendrickx, BHS, Physical Therapist Neil Piller, PhD, FACP
Doctoral Candidate, Hanze University of Applied Director, Lymphoedema Clinical Research Unit
Sciences, Groningen Professor, Department of Surgery
Head, Department of Physical Therapy, Expert Flinders Medical Centre
Centre for Lymphovascular Medicine
Nij Smellinghe Hospital Joseph Rutkowski, PhD
Assistant Professor, Medical Physiology
Karen Herbst, PhD, MD Texas A&M College of Medicine
Associate Professor of Medicine,
Division of Endocrinology Philipp Scherer, PhD
Director of the TREAT Program Professor, Department of Internal Medicine
University of Arizona Director, Touchstone Diabetes Center
The University of Texas Southwestern Medical
Yann Klimentidis, PhD Center
Assistant Professor, Department of
Epidemiology and Biostatistics Hamish Scott, PhD
University of Arizona Head, Department of Molecular Pathology
Centre for Cancer Biology
Amira Klip, PhD University of South Australia
Senior Scientist, Cell Biology Program,
The Hospital for Sick Children, Eva Sevick-Muraca, PhD
Professor of Biochemistry, Physiology and Professor, Cullen Chair in Molecular Medicine
Paediatrics, The University of Toronto Director, Center for Molecular Imaging
University of Texas Health Science Center,
Babak Mehrara, MD Houston
Physician-scientist,
Plastic and Reconstructive Surgery Carrie Shawber, PhD
Memorial Sloan Kettering Cancer Center Assistant Professor, Reproductive Sciences in
OB/GYN & Surgery Department of Obstetrics &
Chia-Ling Nhan-Chang, MD, MS, FACOG Gynecology
Assistant Clinical Professor of Obstetrics and Columbia University Medical Center
Gynecology, Division of Maternal Fetal Medicine
Department of Obstetrics & Gynecology Melody Swartz, PhD
Columbia University Medical Center William B. Ogden Professor,
Institute for Molecular Engineering
Pia Ostergaard, PhD University of Chicago
Senior Lecturer in Human Genetics,
Institute of Cardiovascular and Cell Sciences
St. George’s, University of London
Jens Marc Titze, MD Peter Wang
Associate Professor, Department of Medicine, Doctoral Candidate,
Molecular Physiology and Biophysics Department of Pathology and Immunology
Vanderbilt University Washington University, School of Medicine
H. Eser Tolunay, PhD Annalisa Zecchin, PhD
Deputy Chief, Vascular Biology and Postdoctoral Fellow,
Hypertension Branch Laboratory of Angiogenesis and Vascular
Division of Cardiovascular Sciences Metabolism
National Heart, Lung, and Blood Institute Vesalius Research Center (VRC)
National Institutes of Health VIB-KULeuven
Henricus Gerardus Jacobus Voesten, MD
General and Endovascular Surgery
Chief Surgeon, Expert Centre for
Lymphovascular Medicine
Nij Smellinghe Hospital
LIPEDEMA FOUNDATION REPRESENTATIVES
Felicitie Daftuar, MBA
Founder and Executive Director
Board Member and Former President, Fat Disorders Research Society
Danielle Wildstein
Vice President, Operations
Shannon Seeberg
Vice President, Communications
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